Why we are so Butterflied up!

"Bronsi has always loved Butterflies. She has battled lung infections and difficulty breathing most of her life - during severe attacks she would picture Butterflies and their ability to Fly freely! This would help to soothe and calm her breathing. I always called her 'My Butterfly Princess' and then just out of the blue -The kiddies that she taught 5 - 6yr olds - came up with her name - Bronsi Butterfly and it just stuck!!! Then at age 33 - after years of mis diagnosing her - the doctors finally did the Genetic screening and discovered that she has Cystic Fibrosis. And what is the Cystic Fibrosis Symbol - A BUTTERFLY!!!!!! A Butterfly gives you the Freedom To Breathe . . . . . . . . So that is the Story behind our Miracle Bronsi Butterfly. Love Debs"

Butterflies are our symbol of Hope 

Found out how to help Bronwyn More!

Because Bron spends most her time in bed (she does get to ride in her fancy wheelchair Rosie when she is up to it) but bed is still where she mainly is and they change the bed a lot and use a lot of pillows to prop her up here and there.

I popped two cotton pillow cases in her birthday present this week and Bronwyn ate me up with Gratitude!

Bronwyn is the kind of person who will write you a thank you note for smiling at her so the gushing for two pillow cases meant she really needs them.

So I think I will be wrapping gifts for her and her keepers in pillow cases from now on. 

Happy Birthday Butterfly

Today is our darling Bronwyn's birthday.  A special day in our lives as we celebrate another year this angel has fought to live in our lives.  Her daily encouragement to us in our lives through Facebook and email is a precious gift.  


Bron, we are glad that your kidney functions are improving and that the lung infection that has been ailing you for the past few weeks seems to be subsiding.