Help us help our daughter, sister & friend fly with each breath she takes

Friday, November 30, 2012

Angel messages

Our Bron is feeling better and posting her angel messages for us on Facebook again to inspire and brighten our days out in the world.

Thank you Bronwyn.

Monday, November 5, 2012

More bones broken

"Sorry about your broken foot Bronnie. We send prayers of rapid healing. Thank you for looking after her Debbie even though her foot looks a little funny now. "

Bronwyn put a little pressure on her foot last week and due to her weak bones two of them just snapped.

Bron do you keep count of all the broken bones 'cause I have lost count years ago?

Imagining perfect feet with plump little pink toes for you - perfect for walking. Though I do think your wings carry you so much more aptly these days.

Love little sister Candi xxx

Monday, August 6, 2012

A Great Loss

Photo: My Beautiful Mother on Her Wedding day.  I miss you so much Mommy xxxx R.I.P My Darling xxxxx yr Bronsi Butterfly xxxxx
Photo: I miss you Mommy. .    I wish you could hold me. . . .  Yr Bobby Socks <3 <3 <3 <3
Photo: Thank you for All the Beautiful Memories Mommy. I shall treasure them and keep them Close to my Heart - Always xxxxxxx  yr Daughter Bronsi Amber xxxxx

We regretfully announce the passing of Bronwyn's Beloved Mother Rae Harrington 
on the 12 July 2012.
Thank you Rae for the beautiful Bronwyn in our lives.  

"Thank you My Beautiful Mother for All that you So Lovingly taught Me. You are my Hero and My Role Model. I am so Blessed to have Been Loved ♥ By You. Forever yr daughter Bronwyn xxxxx"

Saturday, May 26, 2012

Hi All - Thursday night was Horrific!!! Bronsi battled for hours - but thank God last night was a better night! Thank you for all your Love, prayers, care, thoughts and concern.
Each one of you makes a huge impact on Bronnie's life. Pls keep the prayers coming. Love and Thanks Debs xx

Wednesday, May 23, 2012

Thank for your support Friends

Hi Everyone- thank you so much for all the well wishes. Bronsi is still really bad. Coughing up a lot of blood, and battling a lot with her breathing. She sleeps most of the time and is very weak. She is hardly eating, but manages some 2 minute noodles every now and then. She sips about a half a mug of chicken soup at night. Please pray hard for her, as she battles through this terrible infection and please God flow through her lungs helping her to breathe easier. Thank you for being such wonderful friends to Bronsi and such an amazing support system. Whenever you think of Bronsi, take a deep breath in, fill your lungs with glorious air in support of her getting better!!!
lots of love and thank you All. 



Debs xxxx

Monday, May 7, 2012

Bronwyn Remembers: a Miracle day as a teacher

It was a Friday at J.G.P.S - It was photograph day for the kiddies and for the Teachers. I wore my Peach dress especially cos we were having photos taken and I brought my jeans and my blue shirt covered in flowers to change into for After Care. It was a stunning day. One where the Sky is that awesome blue colour and you just cant help being in a good mood - And it was Friday so we were all full of joy. After care lunch was my Favourite. Renaldas Hot chips. Oh Yummy I so loved her Home made chips. Peps knew I battled with my eating and she always gave me extra cos it was one thing I enjoyed!!!! Everyone else had gone home and the School was ours. That is it was After Cares. Everyone was buzzing with excitement cos they knew with this weather there would 100% be After care swimming. We all listened for Peps to say the Magic words - POOL TIME. Debs and Peps put the Rubber Rope into the Shallow end to mark where the little ones were allowed to swim. I helped all the little ones into their Cosies (costumes) We had quite a few little Ones from Hillbrow Nursery School. Everyone gathered around while Peps went over the Pool rules like we did every Friday when we swam. Peps blew her whistle the sign that everyone could enter the water quietly. All was going well and much fun was being had when suddenly Elaine yelled out that someone was under the water. Fully clothed I dived into.the water and in 2 secs I reached Elaine. We were in the deep end. Elaine had already dove down and brought up.this little life less body. I held her and swam to the edge where Debs and Peps pulled her out. She was i little 3 year old Nursery school girl called Sihle. And she was DEAD. She had no pulse, no heart beat no breathing. Her lips were Blue and her tongue was huge and swollen and hanging out her little mouth. She had also lost control of her bowls and later the Paramedic told us that was e definite sign that she was dead. Debs Pepe and myself Spun into action. Calm on the outside and terrified on the inside. I ripped my T shirt off as we didnt have a mouth piece needed for breathing into her mouth. Debs began C.P.R and I began Mouth to Mouth alternating with Peps. The Entire time the 3 Of us Prayed. Nothing else in the world existed except bringing this little girl back to life. Debs had never been on any form of C.P.R course but had watched many 911 programs and guided by God - she knew just what to do. Peps and I had been on courses but it is nothing like being faced with a dead child. We prayed and prayed and prayed and continued doing C.P.R and Mouth to Mouth. I didnt even realise tbat i just had my Bra and jeans on!!!! In the meantime Joy with the help of some others had quietly gotten all the children out of the pool and they were all Praying too. Debs had sent someone to Lab to phone the paramedics. You could actually feel Gods presence and his Angels all around us. Suddenly. . . the most Glorious sound - Sihle spluttered and coughed and vomited and OPENED HER EYES and sat up and asked me if I could take her to the toilet. SHE WAS ALIVE. SHE WAS ALIVE. You could have heard a pin drop in that huge area as everyone just stared as the Life came back into this little limp body. I am sobbing with the memory of that Incredible Miracle that God performed that day. The paramedics arrived a little later and were flabbergasted at what had happened. I went in the Ambulance with her. I did put my dress back on and did not go in just my bra. Little Sihle had pneumonia from the huge amount of water in her lungs. But after a few days in the Brenthurst Clinic she was absolutely fine. Our little miracle girl.
Any After care girl from that day who reads this - Thank you for all being so amazing that day and for yr prayers. A life was saved that day and you can all be very proud of yourselves.
Well Darlings that is an account of the Miracle that took place on that very special day
With all my Love Bronnie xxxxxxxxxxx

Friday, April 13, 2012

Unique circumstances and strange realisations

We just realised now, Bron and I, that I have no idea how tall she is. Last I saw her on her feet I was still growing so my memory perspective is way out.

I want to make Bronnie special to her circumstances pj's but realised I had nothing to go on when determining their length!

Monday, March 12, 2012

Awake and messaging

Bronnie is awake and messaging this morning. We've been designing pj's and chatting about food and my blood pressure. Never mind all Bron's health troubles she still worries about my minor ones.

We are into altering that classic hospital gown pattern to better fabrics and loosing those silly spaghetti ties.


Thursday, February 23, 2012

Why we are so Butterflied up!


"Bronsi has always loved Butterflies. She has battled lung infections and difficulty breathing most of her life - during severe attacks she would picture Butterflies and their ability to Fly freely! This would help to soothe and calm her breathing. I always called her 'My Butterfly Princess' and then just out of the blue -The kiddies that she taught 5 - 6yr olds - came up with her name - Bronsi Butterfly and it just stuck!!! Then at age 33 - after years of mis diagnosing her - the doctors finally did the Genetic screening and discovered that she has Cystic Fibrosis. And what is the Cystic Fibrosis Symbol - A BUTTERFLY!!!!!! A Butterfly gives you the Freedom To Breathe . . . . . . . . So that is the Story behind our Miracle Bronsi Butterfly. Love Debs"
Butterflies are our symbol of Hope 

Sunday, February 19, 2012

Found out how to help Bronwyn More!

Because Bron spends most her time in bed (she does get to ride in her fancy wheelchair Rosie when she is up to it) but bed is still where she mainly is and they change the bed a lot and use a lot of pillows to prop her up here and there.

I popped two cotton pillow cases in her birthday present this week and Bronwyn ate me up with Gratitude!

Bronwyn is the kind of person who will write you a thank you note for smiling at her so the gushing for two pillow cases meant she really needs them.

So I think I will be wrapping gifts for her and her keepers in pillow cases from now on. 

Thursday, February 16, 2012

Happy Birthday Butterfly

Today is our darling Bronwyn's birthday.  A special day in our lives as we celebrate another year this angel has fought to live in our lives.  Her daily encouragement to us in our lives through Facebook and email is a precious gift.  


Bron, we are glad that your kidney functions are improving and that the lung infection that has been ailing you for the past few weeks seems to be subsiding.